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First Name : Paul
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Email : pdl@paullesterphoto.com
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Comments : Thanks for sharing your story. I found your website through another lady who suffers from the same disease, I believe. If youve not read it, Id recommend reading: Loving what is by Byron Katie. Its helped me with a number of issues, though none of them he
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Do you have PM DM Lupus or other? : No
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Did you find it interesting? : yes
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Would you like to share your story ? : None to share.
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First Name : Amanda
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Email : amandatreleven@btinternet.com
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Comments : Hello auntie zara, i have just read your web page, it it touch me big time, i really didnt know anything about this. So just thought i would right to say, how much i love you, and miss you. and hope things do get better and you have lots of surport. love
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Do you have PM DM Lupus or other? : no
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Did you find it interesting? : yes
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Would you like to share your story ? : no
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First Name : kim
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Email : pawnshopgrl78@yahoo. com
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Comments : this is a great website.
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Do you have PM DM Lupus or other? : dm
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Did you find it interesting? : yes
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Would you like to share your story ? : yes
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First Name : antoinette
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Email : antoinette_preudhomme@web.de
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Comments : Dear Zara !first of all id like to congratulate you on your website.I have a dear friend in Massachusetts who suffers from myositis.Every so many years I get a chance to see her.
So I fairly know what it is all about and I send you the biggest wishing we
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Do you have PM DM Lupus or other? :
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Did you find it interesting? :
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Would you like to share your story ? :
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First Name : Tina
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Email : mccune_tina@yahoo.com
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Comments : Hi Zara, Nice home page! You have put a lot of work and energy into it and I appreciate it and I know others do too.
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Do you have PM DM Lupus or other? : DM
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Did you find it interesting? : Yes
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Would you like to share your story ? : not yet
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First Name : jackie
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Email : jackiemccollum@hotmail.com
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Comments : your story has touched my heart and, and hope we can become freinds..
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Do you have PM DM Lupus or other? : pm
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Did you find it interesting? : yes
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Would you like to share your story ? : yes
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First Name : Prasad
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Email : prasad_a20@yahoo.com
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Comments : Zara, nice website !! Thank you for sharing all the stories. You are doing a wonderful job by spreading the word around.
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Do you have PM DM Lupus or other? : DM
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Did you find it interesting? : Yea !
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Would you like to share your story ? : Yes
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First Name : Doug
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Email :
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Comments : I Love you Zed, you are one of the best friends I have.
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Do you have PM DM Lupus or other? : No
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Did you find it interesting? : Yes
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Would you like to share your story ? :
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First Name : Sharlynn
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Email : scirco@gmail.com
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Comments : I have been struggling with DM for 25 yrs. I used to be very shy about talking with anyone about this disease. I felt pretty alone and still do to some extent. Thank-you for your help and many other for getting these diseases out there so people will be b
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Do you have PM DM Lupus or other? : DM
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Did you find it interesting? : VERY!
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Would you like to share your story ? : Possibly
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First Name : Dawn
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Email : dawnski_98@yahoo.com
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Comments : Good to come online and visit your page. Great to see that there are others out there like me.
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Do you have PM DM Lupus or other? : DM
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Did you find it interesting? : yes
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Would you like to share your story ? : Will find some time....
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First Name : Larry
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Email : bhcco@iland.net
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Comments :
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Do you have PM DM Lupus or other? : IBM
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Did you find it interesting? : yes
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Would you like to share your story ? :
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First Name : judy
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Email :
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Comments : will e-mail
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Do you have PM DM Lupus or other? : PM
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Did you find it interesting? : yes very
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Would you like to share your story ? : yes
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First Name : Amy
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Email : sunflowera2003@yahoo.com
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Comments : Hi there.
Its great to know that there other people with pm. i am not working I have had Pm since 08/03 and i had been working up until last October of 06 i tried to work part time but i was to tired.Now on full disability and I would love to hear from o
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Do you have PM DM Lupus or other? : pm/sjogrins/lung
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What else would you like to see on the pages :
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Would you like to share your story ? :
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First Name : Linda
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Email :
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Comments : Great, can relate to all you said
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Do you have PM DM Lupus or other? : PM DM
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What else would you like to see on the pages :
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Would you like to share your story ? : Yes
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First Name : Mara Brill
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Email : marab@earthlink.net
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Comments :
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Do you have PM DM Lupus or other? : DM
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What else would you like to see on the pages :
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Would you like to share your story ? : Sure
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First Name : Cheryle
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Email : CheryleMiller@comcast.net
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Comments : This is great to be able to share our stories.
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Do you have PM DM Lupus or other? : other
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What else would you like to see on the pages :
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Would you like to share your story ? : yes
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First Name : rose
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Email : rmd5_8@msn.com
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Comments : my mom used to say that everyone has something iot really is scary how many somethings there are..your site is an inspiration....
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Do you have PM DM Lupus or other? : MS
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What else would you like to see on the pages :
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Would you like to share your story ? :
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First Name : Jenny
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Email : jen1daisy@yahoo.ca
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Comments : Great site ... keep the fight going! Ive been finally diagnosed since Aug of 2006 but have had DM for a lot longer than that.
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First Name : Judy Dittmer
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Email : mamaditt@yahoo.com
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Comments : All I can say Zara is thank you for all your info. Best of luck and look forward to seeing you on the 9th of April..Jude
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First Name : Karen
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Email :
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Comments : You must have a wonderful spirit. Enjoyed your site and your symptoms and diagnosis sound very similiar to myself. Carry on with the good work.
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First Name : Cheryl
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Email : cstock@sympatico.ca
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Comments : Enjoyed your new web page. I was dx with PM in September 2006. Like you I am getting my strength and endurance back. Just finished 8 weeks of rehab. Besides medication I found exercise, eating healthy and positive attitude helped. Your website looks great
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First Name : Gail
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Email : gwidholm@prodigy.net
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Comments : Zara,
Your website is wonderful and another means of educating people about dermatomysositis. Like you, I had never heard of it until I was told I had it. I had to ask the doctor to spell it because I couldnt understand what he was saying. Keep up the go
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First Name : Trudy Rose
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Email : brodym@optonline.net
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Comments : Zara, I love your webpages/ so familiar/ painful to read yet your
true colours come out/ sense of determination, humor and independence..thanks for sharing and for helping us on the message boards/
it means alot to see your postings/
keep up the great
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First Name : Suzy
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Email : davis1102@cox.net
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Comments : Totally grand. You get the amazing person award. LOVE! Suzy
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First Name : JOAN
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Email :
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Comments : NICE WEB SIGHT ZARA. YOUR DETERMINATION TO GET THE WORD OUT IS REALLY MOVING IN THE RIGHT DIRECTION. FROM ONE DM TO ANOTHER!
JOAN
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First Name : Dori
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Email :
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Comments : Zara...ur strength and determination is so inspiring! Love the website, very informative! In our prayers!!!- Dori and Vince
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First Name : Noelle
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Email : unidiva3@aol.com
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Comments : I also have DM. Thank you so much for starting this site!! Your story is SO familiar. Its good to know im not alone!
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First Name : George IBM
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Email : costy1@sbcglobal.net
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Comments : Great Web Site Take Myositis as
another bump in the road of life
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First Name : Wendy
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Email : iamdettado@yahoo.com
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Comments : Nice site...Its good to hear someone that has strength maybe not in their legs but in their thoughts....
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First Name : Daniel
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Email : drrreeves11@aol.com
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Comments : Very good
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First Name : Shannon
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Email : shannonking@clearwire.com
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Comments : Zara,
Im so sorry to hear of your pain, but am inspired by your will and focus on living your life. Please kiss that man of yours for me.
Shannon King
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First Name : Sam
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Email : AMVETS13@aol.com
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Comments : So sorry for you. Hang in there. My prayers are with you.
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First Name : Bill
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Email : bill_simeral@yahoo.com
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Comments : Zara, great website. Thanks for sharing your story with us. Hope you continue to improve. There really is hope for all of us with myositis diseases. Bill
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First Name : Mike
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Email : mikehansen68701@yahoo.com
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Comments : Great work Zara on your home page. You are getting stronger every day also I can see it when you are out you can beat this thing.
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First Name : Barb
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Email : barbie_lo84@hotmail.com
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Comments : Zara knowing you personally, and knowing your determination to over come all obstacles, i know you will beat this disease on its own terms. You have done a wonderful job with your home page, as others have said you laid this out very well. I am reading an
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First Name : Joy
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Email : wgates1@columbus.rr.com
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Comments : Great!!!
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First Name : kelene
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Email : kkinnersly@cogeoc.ca
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Comments : Its nice to see that we cam move beyond lifes challenges. I told a friend , my body may not work to great but my mind is still vibrant and strong. Your ambition is a very good example of both. Best of luck.
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First Name : Linda
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Email : lvaux1349@aol.com
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Comments : Great job!! If anyone can deal with this terrible disease I know you will. I hope you know if there is anything I can do you just need to let me know........... I am here. Hugs.........!!
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First Name : Terri Davis
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Email : terrildavis@tx.rr.com
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Comments : Hi, My name is Terri Davis and I live in the Dallas Texas area. I was just diagnosed with Dermatomyositis. I have lost my voice and now am having trouble pronouncing words and letters. My voice has one tone and it is very low. My Rhuemetologist put me on
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First Name : Jo
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Email :
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Comments : Wonderful site! Youve done a terrific job. Very well put together and informative. I am so honored to know you! Love, Jo
(From the FMS/CFS/ME Board)
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First Name : jan
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Email :
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Comments : Great page! Well written. I also enjoy your posts on the TMA page. janIBMspouse
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First Name : Christine
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Email :
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Comments : Good Job Girl,
well done !!!
xx
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First Name : Dagmar
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Email : daxslaven@comcast.net
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Comments : great job, Zara, keep it up!
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First Name : elizabeth
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Email : elizabeth_falcone@yahoo.com.au
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Comments : well done Zara, so nice to read about the real difficulties.
Congratulations
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First Name : Phil Bousley
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Email : pbousley@vincennes.net
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Comments : Good job. To a non-myositis person this is educational. To a myositis person, we say. Heres another sister to share our experiences with.
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First Name : madlon
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Email : kglenn@triad.rr.com
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Comments : Zara,
Beautifully done! the beginning of the disease for both of us is so similar!
Whitey is one special guy. Give him a big hug from me and a lick from Bentley.
Love,
Madlon
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First Name : Gwynneth
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Email : sgmylward@hotmail.com
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Comments : Well done Zara for starting your own page. I suppose it is something I should have thought of when I was diagnosed with DM 20 months ago (after having rash symptoms for quite a long time before that). This will be a great help to newly diagnosed patients.
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First Name : Zia
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Email : zia.knapp@us.army.mil
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Comments : Nice page MOM!! Let me know if you need anything else.. Love you
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